Our son, EA, is non-verbal and severely affected by autism and his learning disability.
When he was 19 years old, he visited Kingwood College (now named Transition Service) in Reading and he seemed to enjoy looking around. We took pictures of him during his visit and put them up on the wall in his room at home.
He was interested in the pictures and frequently went over to touch them which reassured us that he had enjoyed his visit and may be ready to leave home.
Over the following two weeks EA visited Kingwood College several times, first spending the day there, then overnight in his own room, then for several nights at a time as part of a gradual transition to his new home away from us.
In April 2013 he left home to move into Kingwood College. He quickly seemed happy with his new life, so after four weeks, once we knew he had settled in well, we visited him every week.
EA lived at Kingwood College for the next five years during which time he became more confident, going out more often to different places, doing different activities - shopping, cooking, travelling on a bus. He was supported to develop more life skills - choosing what clothes he wore every day, cleaning, clothes washing, vacuuming - although he still doesn’t enjoy housework!
He greatly expanded the range of foods he ate, learned to drink from a cup (rather than a sports beaker), went out for several walks every day around Reading with his support workers, and spent time eating meals and watching TV in the communal areas with other residents and sitting in the garden with his support workers.
The service manager and support workers got to know EA well very quickly. Initially they often asked us about EA’s likes and dislikes, and sought advice on how best to support EA.
He was changing and growing into a more rounded and capable young man to a degree that he probably would not have, had he still lived at home. Kingwood kept us informed of EA’s progress, and facilitated regular visits so that we remained involved EA’s life. Kingwood were also supportive of our roles and responsibilities as Court of Protection Deputies for EA.
When EA was 24 years old, he moved to a new Kingwood service, living in his own flat. The new service had problems in recruiting enough permanent staff and relied on agency staff, some of whom did not know EA well which caused some problems, particularly over the Covid period. However when Kingwood joined the Government’s sponsorship programme for overseas support workers, Kingwood were able to recruit several additional permanent support workers.
Now that EA has a large team of permanent staff with excellent managers, there is an effective and positive ‘joined up’ working approach to his care. His support has improved significantly over the last 15 months and is now consistently good.
Kingwood has supported EA for nearly 11 years, and despite his disabilities, he is now living his best life. He regularly goes out walking with his support workers and is driven in his car for walks further afield. With his support workers, he regularly visits different places (the museum, cinema, farm shop, shopping centres, cafes). He also goes with his carers for a short break in a holiday cottage each year.
During the 11 years that EA has been supported by Kingwood, we have seen a varying quality of support, so we are acutely aware of what can go wrong for EA when support is not consistently good. We understand there are many challenges associated with the provision of support to disabled people, particularly EA, given the severity of his disability and it’s affect on him. We rely on Kingwood to continue to provide the good quality support EA now receives.
Each of us continue to visit EA every week and we are grateful to support staff and service managers for their professionalism and their genuinely caring EA-centred support.