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Kingwood Lecture Series - previous lectures

Tuesday 17 April 2012

Understanding the When, Where and What of Fragile X Syndrome – implications for Autism Spectrum Disorders. Delivered by Peter C Kind, PhD, Professor of Developmental Neuroscience, Edinburgh University.

Fragile X syndrome (FXS) is the most common genetically inherited form of mental retardation affecting approximately 1:4000 males and 1:8000 females.  It is caused by genetic silencing of the fragile X mental retardation 1 (FMR1) gene. Fragile X syndrome (FXS) individuals have many behavioural symptoms in common with individuals with autism spectrum disorder (ASDs) and most fragile X males will meet autism diagnostic criteria at some point in their lives.

This talk focused on how synapses develop in models of FXS syndrome, focusing on the nature of these alterations and when alterations first appear. It also explored the rationale behind developing pharmaceutical interventions for treating FXS.  Finally it will examine the relationship between FXS and certain forms of ASD at the level of the synapse.

Peter Kind is Co-Director of the Patrick Wild Centre (for Research into Autism, Fragile X Syndrome and Intellectual Disabilities), University of Edinburgh and took up a lectureship at Edinburgh University in January 2000.  Peter graduated from Dalhousie University with a BSc in Neurosciences in 1988.


Wednesday 21 March 2012

Living in the community – housing design for adults with autism. Delivered by Andrew Brand, Designer and Engineer.

The presentation covered a two-year project that brought together the Kingwood Trust and the Helen Hamlyn Centre for Design, Royal College of Art, in a research partnership that explored how design could improve living environments for adults with autism, support their specific needs and improve quality of life. Research methods, key findings and concepts from the study were presented.

Andrew is a Designer and Engineer. From October 2009 to September 2011, Andrew worked in partnership with the Kingwood Trust and the Helen Hamlyn Centre for Design, Royal College of Art, to develop guidance and evidence-based concepts for the design of supported-living environments for adults with autism.

Andrew is now working on the commercialisation and roll-out of his award-winning product, the Squease inflatable Deep Pressure vest. Squease is a therapeutic garment for people with sensory differences such as people with autism, ADHD or Dementia. He has founded a limited company, also called Squease, with a vision of creating other products that may benefit people with different abilities.

Andrew is also a co-founder of BREAD, a collective entity that brings together multidisciplinary individuals to engage in research led design practice, and a visiting tutor at the Royal College of Art under the Royal Academy of Engineering's Visiting Teaching Fellows scheme.


Wednesday 15 February 2012

Kingwood Lecture Series - "Supporting Families". Delivered by Andrew Powell, National Autistic Society

Andrew’s presentation focused on a pathway for parental post diagnostic support and then looked in more detail at how parents benefit from the Teenage Life programme.

Andrew works for the National Autistic Society (NAS) based in Bristol. He co-developed the Home Office funded NAS help! Programme. Over 20000 parents have attended this post diagnostic support programme, which covered the UK. Currently Andrew is running a new programme called Teenage Life for parents of 8-18 year olds with autism. This has been positively evaluated by Bristol University.

Andrew also works as a freelance autism consultant for a NHS autism service in Bristol and runs a social group for adults with Asperger syndrome. Andrew is the author of the Department of Health funded Taking Responsibility and co-author of Social Care – Assessment of need for adults with an autism spectrum disorder. His most recent book is Autism : Understanding and Managing Anger.

Download lecture notes


17 January 2012

Kingwood Lecture Series - "Social Skills Training, Social Groups and Counselling". Delivered by Anja Rutten, Senior Lecturer, Staffordshire University

People with autism spectrum disorders often experience social isolation. This may in part be due to some of the difficulties in communication and interaction associated with being on the spectrum, but the other side of this is that mainstream society often does not meet the needs of people with ASD. It is commonly accepted that many people with ASD have high levels of emotional distress, in particular anxiety and depression. Research with neurotypical populations shows that good social networks provide some protection against mental ill health and that counselling interventions are effective for alleviating emotional distress. In practice however, many people with ASD are excluded from social opportunities and psychological interventions. In this lecture we will focus on some of the ways in which opportunities can be created to facilitate people with ASD.

Anja is a Senior Lecturer in Psychology and Counselling at Staffordshire University where she specialises in training counsellors in addition to being responsible for undergraduate modules on psychological interventions and autism. Anja also is a qualified counsellor and psychotherapist with significant experience in working with people on the autism spectrum and their families. Until November 2007 Anja was Head of Social Programmes and Befriending at the National Autistic Society. Anja’s current research focuses on therapy experiences of clients with Asperger syndrome and the evaluation of person-centred/emotion-focused therapy for this group of clients.

Download lecture notes


16 November 2011

Kingwood Lecture Series - "Keeping out of Trouble – people with autism and the Criminal Justice System" Delivered by Alan Bicknell, Deputy Chief Executive, Autism Anglia

The lecture gave an overview of autism spectrum conditions and examples of people with ASC who have offended.

In his presentation, Alan coverd some of the reasons why people with an ASC are likely to find themselves in “trouble” and strategies for trying to prevent this happening, including guidance for the police.

Alan trained as a teacher before beginning a career in the third sector which has seen him developing and managing services for organisations such as Mencap, Mind, the National Autistic Society and at present Autism Anglia. Always working within the broader field of learning disability and mental health provision, Alan has now specialised in Autism Spectrum Conditions for almost 15 years. A principal trainer with the NAS, he is also an experienced conference speaker, the author of one book, -Independent Living for adults with autism and Asperger syndrome and led on the NAS’s strategy for supporting people with ASC in the Criminal Justice System.

Download lecture notes


19 October 2011

Kingwood Lecture Series - "Dogs Are Good For Us" Delivered by Peter Gorbing BA (Hons) MBA Chief Executive, Dogs for the Disabled
Dogs are good for us. They make great pets, provide practical support and companionship to people with a range of disabilities and bring joy to the lives of millions of people. Kingwood and Dogs for the Disabled are collaborating on a research programme to assess the potential impact of dogs on improving the lives of people with autism.

In this lecture, Peter Gorbing looked at the history of how dogs have worked alongside people with a wide range of disabilities and analyse what we have learnt through the practical application of, and research into human-dog interaction. Peter also looked forward to the future, believing that we have only started to scratch the surface of the potential benefits that can come from dogs and people working alongside each other.

Peter Gorbing is the Chief Executive of Dogs for the Disabled, an Accredited Member of Assistance Dogs International (ADI). Dogs for the Disabled train assistance dogs to help disabled people live life more independently and was the first assistance dog programme in the UK to train dogs for children with physical disabilities and started training autism assistance dogs in 2007. The charity launched an innovative family project called PAWS (Parents Autism Workshops and Support) in 2010 and is carrying out major research, funded by the Big Lottery Fund, to evaluate this work in the field of autism.


13 April 2011

Kingwood Lecture Series - "Two-way Pathways between Research and Clinical Practice & Health Policies" Delivered by Professor Sir Michael Rutter - Institute of Psychiatry, King's College, London
As a result of research, there is general agreement on the key diagnostic features of autism spectrum disorders: it has provided good diagnostic measures; has shown that autism is associated with an increase in the rates of epilepsy and brain imaging abnormalities; that it is associated with social cognitive deficits; that the liability to autism involves strong genetic influences but that the genetically influenced liability extends beyond the traditional diagnostic concept; that IQ level and level of language impairment are strongly associated with prognosis; and that developmentally oriented behavioural treatments bring about worthwhile short and long-term benefits but currently available drug treatments are of very limited use.

After looking at the lessons learned from autism research from the 1950s to the present day a brief discussion will follow of false research claims and how to identify good research, and attention will be drawn to the 10 main points on how research has changed clinical work.

Professor Sir Michael Rutter is Professor of Developmental Psychopathology at the Institute of Psychiatry, King's College, London. He was Professor of Child Psychiatry at the Institute of Psychiatry from 1973 to 1998.


15 February 2011

Kingwood Lecture Series - "A Window on the Biology of Behaviour" Delivered by Tony Holland
This talk explored how the investigation of genetically determined neurodevelopmental syndromes can inform our understanding of specific developmental profiles, such as autism spectrum conditions (ASC), and also our understanding of the biological basis for specific maladaptive behaviours or psychiatric disorders, such as affective disorder or psychotic illness.

Tony Holland is a psychiatrist specialising in learning disabilities. Since 2002 he has held the health Foundation Chair in the Psychiatry of Learning Disabilities at the University of Cambridge. He leads the Cambridge Intellectual and Developmental Disabilities Research Group in the Department of Psychiatry.


19 January 2011

Kingwood Lecture Series - "Autism & Talent" Delivered by Professor Francesca Happe
The talk explored the special interests and talents that have been highlighted in parental, clinical and autobiographical accounts as important motivators for people on the autism spectrum.

Francesca Happe is Professor of Cognitive Neuroscience at the MRC Social, Genetic and Developmental Psychiatry Centre at the Institute of Psychiatry (King’s College London). She studied Experimental Psychology at Oxford and did her PhD on autism at UCL. Her research interests centre on autism and Asperger Syndrome


12 October 2010

Kingwood Lecture Series - "Current Initiatives in Autism Research" Delivered by Dr Jenny Longmore
The talk covered work carried out by researchers who have come together to study subjects such as genetics and brain imaging.

Jenny Longmore has over 20 years' experience in neuroscience research and is a Consultant for Autistica. She trained as a pharmacologist and physiologist at the University of Sheffield before undertaking a PhD in clinical pharmacology and experimental psychiatric medicine at the University of Manchester.


15 September 2010

Kingwood Lecture Series - "The Past and Future of Theories of Autism" Delivered by Lorna Wing MD FRCPsych
The lecture covered the first psychogenic theories of autism and the subsequent change to theories of disorder of development of aspects of brain function, especially affecting the social instinct. Lorna Wing was an honorary consultant psychiatrist to the Maudsley Hospital, London until retirement in 1990, researching autistic disorders and learning disabilities. Currently training professional workers in diagnosis of autism spectrum disorders and related conditions. Lorna is a founder member of the National Autistic Society.


23 March 2010

Kingwood Lecture Series – "The New UK Brain Bank for Autism and Related Developmental Research" Delivered by Brenda Nally
In her lecture entitled "The New UK Brain Bank for Autism and Related Developmental Research" Brenda Nally explained what this new initiative involves and the contribution it will make to the understanding of autism by investigating how the brain develops and functions differently when affected by the condition. Brenda Nally is a member of the Oxford University team for this programme, having also worked as Regional Co-ordinator for NAS. For many years her work focussed on supporting the development of better resources for people with autism and their families.


3 February 2010

Kingwood Lecture Series – “Current issues in Autism and Asperger Syndrome" Delivered by Dr Ekkehart Staufenberg
Our guest lecturer in February was Dr Ekkehart Staufenberg & who’s lecture examined matching present needs to emerging service in infrastructure. Dr Staufenberg is a senior consultant at the East of England Regional Forensic Service and has long standing experience in assessments pertaining to individuals with high functioning autism and Asperger Syndrome.


20 January 2010

Kingwood Lecture Series – “Autism and Asperger Syndrome" Delivered by Dr Greg Pasco
Kingwood began 2010 with a lecture from Dr Greg Pasco which described the early social communication difficulties of children with autism spectrum disorders and the range of skills and deficits relating to language and communication that are typical of young children with autism. Issues in communication typical in adolescents and adults with Asperger syndrome were also covered in Dr Pasco’s address. Dr Pasco is a Research Associate at the Autism Research Centre at the University of Cambridge.


17 December 2009

Kingwood Lecture Series – “Getting Answers from Babies about Autism" Delivered by Dr Mayada Elsabbagh PhD
“Getting answers from babies about autism” was the topic covered by Dr Mayada Elsabbagh PhD when she addressed our audience in December. This lecture looked at latest research into how and when autism emerges in infancy, through the study of infant siblings of children with autism. Dr Elsabbagh is the scientific co-ordinator for the British Autism Study of Infant Siblings (BASIS).


25 November 2009

Kingwood Lecture Series Launched – “Autism Now”
Kingwood launched a new major initiative with a unique series of lectures about autism covering research and practice. Named ‘The Kingwood Lecture Series’ the occasion was marked with an inaugural lecture from Professor Anthony Bailey who examined autism from both a historical and current perspective, together with the impact research is having on our understanding of the condition. Professor Bailey concluded with a look to the future and what this may hold for people with autism. Professor Bailey, IMH Chair in Child & Adolescent Psychiatry UBC Institute of Mental Health University of British Columbia.

 

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